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Showing posts with label patient. Show all posts
Showing posts with label patient. Show all posts

Wednesday, October 26, 2011

The value of silence when a patient dies

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AppId is over the quota
25 October 2011 Last updated at 06:07 GMT Surgeons and nurses Surgeon and columnist Pauline Chen suggests doctors and nurses should be obliged to pause for silent reflection when someone they are treating dies. It would be good for them, she says, and may make them better carers.

On hospital wards, in the operating room, in clinics and in the intensive care unit, there should be a mandatory five-minute silence when a patient dies.

The doctors, nurses and all who had been caring for the patient at the end would gather around the bedside for those five minutes and reflect in silence on that patient's life and death.

In my experience, there's a moment right after the patient dies when most caregivers, particularly doctors, will scatter - if not in presence then in mind.

We immediately think about going to see the next patient, cleaning the room, getting the body ready to go to the mortuary. Anything to avoid confronting the reality before us because, for those of us who practise in wealthier countries, a patient who dies represents our professional failure.

Continue reading the main story
One reason we don't do a better job caring for the dying is that we hardly ever acknowledge our own responses to those who have died”

End Quote Several years ago, I took care of a young woman who had had a transplant a decade earlier but who was now hospitalised because of a series of infections.

She was slender and blonde, and I can recall how she loved talking about the novels she had read and the way she raised her right hand to her forehead, palm facing outward, to pat her hair.

But on the night she bled to death from an infection that had eroded into a major artery, none of us stopped to remember the lively conversations about literature.

Instead, as soon as she was pronounced dead, we became preoccupied with seeing the next patient, removing the stains from blood that had gushed up to the ceiling and disposing of the used needles and syringes strewn on her bed.

We did not talk about her, the woman who had just died in the room.

Weighed down

I have often thought back to the fact that I did not stop to remember her or acknowledge her impact on me. There was no closure to our relationship, no acknowledgment of her life or my grief.

Continue reading the main story Pauline Chen Dr Pauline Chen laid out her idea on The Forum, on the BBC World Service, and discussed it with literary editor Diane Athill and poet Paul MuldoonThe Forum presents ideas from the world's biggest thinkers every week Broadcast on Saturday at 09:05, 22:05 and Sunday at 02:05 and 15:05Had I lived those moments around her death differently, perhaps the details of her death would not be frozen in my mind as they are now, a few minutes replaying over and over again.

Perhaps by acknowledging her passing I would not be as weighed down by what was lost, even as I continued to care for other patients.

I believe that instituting the five-minute pause for silence after a patient dies will change the way doctors, nurses and other caregivers approach death.

First, it will give closure, as well as respect, to the relationship between that patient and his or her caregivers.

Second, the conscious pause, the act of taking time out, will establish a ritual. And rituals, consistently practised, offer great comfort at difficult moments.

Finally, the five-minute silence will allow caregivers to acknowledge their own feelings.

I am convinced that one of the reasons doctors and other healthcare providers don't do a better job caring for the dying is that we hardly ever take the time to acknowledge our own responses to those who have died. We deny those feelings only to end up constrained by them.

A five-minute pause for silence would allow us to attend to our own grief about a patient who has died and free us to commit ourselves fully to those who will follow.

Pauline Chen is a liver surgeon and author of Final Exam: A Surgeon's Reflection on Mortality. She also writes the Doctor and Patient column for the New York Times.



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Wednesday, September 28, 2011

Multiple sclerosis patient finishes record 50th marathon

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AppId is over the quota
By Marice Richter

DALLAS | Sun Sep 25, 2011 7:51pm EDT

DALLAS (Reuters) - Life has taken long-distance runner Patrick Finney down many paths, but few have been so rewarding as the one that led him across the finish line on Sunday at the Bellingham Bay Marathon in Washington state.

It was there that Finney, 48, of the Dallas suburb of Grapevine, achieved a personal milestone and made history.

"I am the first person with multiple sclerosis to complete a marathon in all 50 states," he said triumphantly, in a phone interview with Reuters moments after finishing. "It's been an amazing journey, and I'm on top of the world."

Strong, gusty winds made the race especially difficult, and Finney felt queasy when he finished. But he recovered quickly to celebrate with a group of nearly 30 friends and co-runners from Texas, who accompanied him to Bellingham, Washington, to witness an achievement that would have been unimaginable a few years ago.

In 1998, he was diagnosed with MS, an autoimmune disease that attacks the central nervous system and produces various impairments, including difficulty walking.

"My MRIs were consistent with someone who should be in a wheelchair," Finney said.

The diagnosis in 1998 by a doctor in Washington, D.C., was discouraging for the 6-foot-4 software test engineer, who had recently taken up running to shed some weight from his then-300-pound frame.

Finney was directed to "take my medicine and take it easy," but he refused to follow that advice.

Instead, he returned to a regimen of moderate running, which he continued when he relocated from the nation's capital to the Dallas area in 2000.

By 2004, however, the disease had left him unable to walk. But unwilling to endure a life of infirmity, Finney managed to regain his ability to balance on two feet, to walk -- and eventually to run -- through extensive rehabilitation therapy and new medications.

"The first year was a real struggle for me," he said of returning to the running trails. "I was going through a pair of running shoes every two weeks because I scraping them up as I dragged my feet."

But with training, he entered a half-marathon in Dallas in 2005 with only one goal -- to finish. Most of the runners did that in less than two hours. Finney took just over four.

The following year, he ran his first full marathon -- 26.2 miles -- and hasn't stopped since. He also took up coaching.

When a friend challenged him in 2010 to run 50 marathons in 50 states by his 50th birthday, Finney couldn't say no. He developed a plan, put together a spreadsheet and prepared to meet the challenge in 3 1/2 years.

But when he crossed the finished line in just under five hours on Sunday, a couple weeks past his 48th birthday and two years before his goal, he exceeded his own expectations.

"I have gotten to travel to a lot of new places and meet a lot of great people," he said. "It's been a wonderful experience."

This is hardly the end for him. Having completed a total of 71 marathons since 2006, he plans to run in seven more this year.

Long-time friend Jill Parker is in awe, but not surprised.

She recalled an incident several years ago in which a group of runners were preparing for a race on a hot, humid September day in Dallas.

"Everyone was moaning and groaning about the weather except Patrick," Parker said. "He was smiling. When someone asked why he wasn't bothered by the weather, he replied, 'I'm just happy to be able to run.'"

(Editing by Karen Brooks and Steve Gorman)



View the original article here



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